Raising a child with an illness or disability can be rewarding yet challenging at the same time. It is exciting to see them make progress and achieve goals, but getting them to that point can be mentally, physically, and emotionally exhausting. When a child has an illness or disability it can have both a positive and negative impact on families.
Parents want what is best for their child. However, in the face of illness or disability, they may be always second-guessing themselves. Is there a better treatment option? Are they making the best choice? Could they be doing more? What if they had done X instead of Y? There are many unknowns and this can be very stressful.
There can also be a significant financial impact of raising a child who has special needs or is facing a life-changing illness. There are doctors’ appointments, medications, equipment, therapies, and other costs that can quickly add up. Parents may devote a lot of their time to caring for a child’s condition and other siblings may feel left out.
Balancing the demands of raising a child with an illness or disability along with other responsibilities can be tough. It takes a lot of time, support, organization, and resources, but it is doable.
Dealing with illness or disability can also bring families together. They can feel a sense of cohesiveness in learning as much as they can, advocating for research and care, and figuring out what works best for their family. Families may adapt to their own way of doing things and planning trips or special time with one another. They may also create lasting friendships with others who are going through similar experiences. This can reassure them that they are not alone.
Families can also come together to celebrate the child’s progress and accomplishments. They are all an integral part of each other’s well-being and supporting one another in thriving. Getting actively involved in treatment or therapy can bring everyone closer together.
Building a strong support system is important. It can equip families with knowledge, resources, and support. Navigating the unknowns, trying to establish a new ‘normal,’ and not knowing what the future holds can be unnerving. With a solid support system, families know that they are not alone in their journey and that others are going through the same thing. Also, there are people who will stand by their side through thick and thin, doing whatever they can to help.
Life with an illness or disability is an adventure. No two days are the same. Lake Wylie Children’s Charity strives to support families through their journey by hosting fundraisers and special events, collecting monetary or in-kind donations, and identifying valuable resources. No family should have to deal with a chronic illness or disability on their own. If you would like be a part of giving back or have a child you want to nominate, contact Lake Wylie Children’s Charity today.
We can’t wait to hear from you!